One of the first things most parents do upon hearing the news that their child has cancer is search for help and resources. We believe that finding and gaining support from DIPG (or Diffuse Intrinsic Pontine Glioma) community groups and foundations were critical in keeping our family focused and strong. This is why we know Gabriella was— and will always be— #StrongerThanDIPG, and so are we. Though we are not directly affiliated with the organizations listed below, we hope that you find them to be as helpful and supportive to you as they were to our family.
Please keep in mind that many organizations will require an application, or have certain necessary criteria in order to qualify for aid. This is a great opportunity to ask those close to your family to assist in finding and contacting organizations that can provide support or financial assistance.
Organizations Offering Information, Support, & Financial Assistance
4AydenStrong Foundation - Support and financial assistance
Brooke Healey Foundation - Awards, scholarships, and monetary donations to families in need
Clayton Dabney Foundation - Support through wishes, gifts, special events, family travel, and financial assistance for household expenses for cancer or cancer related illness for children 18 and younger
Cory's Crusaders - Research and financial assistance for pediatric brain cancer families
The Friends4Michael Foundation - Financial assistance for pediatric brain cancer families
Get Well Gabby Foundation - Hope Portal offers a robust list of organizations around the country providing assistance to children with cancer and their families
Hogs For the Cause - Financial assistance for pediatric brain cancer families
Kisses for Kyle - Financial assistance, gift cards, gift certificates, gas cards for pediatric cancer families
Live Like Bella - Financial support and family assistance with medical co-pays, basic needs such as gas, food, utilities, memorial support, and research for pediatric cancer families
Keris Kares - Spiritual, emotional, and financial support through the Butterfly Fund at certain medical facilities
Max Cure Foundation - Advocacy, research, and financial assistance
Marc Jr's Foundation - Financial assistance
Michael Napoleone Memorial Foundation - Family assistance; contact for details
Pennies from Heaven, Caleb's Foundation - Financial assistance for rent or mortgage payments, electric or medical bills, groceries, transportation, and more
Smiles for Sophie Forever - Financial assistance twice during a given 12-month period
Reflections of Grace - Financial assistance twice during a given 12-month period
Team Daniella's Childhood Cancer Foundation - Financial assistance for families
Tyler Robinson Foundation - Financial assistance through grants for families faced with pediatric cancer aged 18 or younger, and who are struggling to make ends meet (Note: TRF requests grant applications from our partner hospitals; currently, the TRF does not accept unsolicited requests)
DIPG-Focused Organizations & Support
Note: For international DIPG organizations, please visit our International Child Cancer Support Resources section below
Julianna Sayler Foundation - Financial assistance in the form of a $500.00 USD grant given to a families with children diagnosed with DIPG brain cancer. Grants can be used for purposes that benefit the child, including treatment travel expenses, medical expenses, lodging, airfare, food, gas, and more
Michael Mosier Defeat DIPG Foundation - Research and tribute funds for children
Aiden’s Light- Their MISSION is to raise awareness about Diffuse Intrinsic Pontine Glioma (DIPG), raise money for research into a cure for DIPG and other childhood cancers, and to support families financially and spiritually who are directly affected by DIPG and/or other childhood cancers. Contact them for assistance.
DIPG Facebook Groups
DIPG Treatment Advisory Council- A centre of brain cancer therapy guidance for parents and kids with a newly diagnosed DIPG. Strong medical advisory board + experienced DIPG advisors.
Diffuse Intrinsic Pontine Glioma: DIPG/Brain tumor/Cancer Families- Members are admitted very selectively, as we wish to keep this group tightly focused on the needs of those who are closely impacted by DIPG.
DIPG (Diffuse Intrinsic Pontine Glioma) Awareness for Family and Friends- For Families and Friends of the family looking for DIPG supprt.
DIPG talk- A place for those with experience of DIPG, to help those who need guidance for their family member with this type of cancer.
DIPG Research- DIPG Research is Not a Support Group but more for information purposes. This is a Medical Group Only.
DIPG Support and Awareness- A place for DIPG families, friends and supporters to come together. Support and awareness for DIPG. Daily posts, updates and stories on DIPG and children and adults with DIPG.
DIPG Parents Only Sanctuary- This is a Private Group just for Parents of DIPG Children. All parents welcome.
DIPG Warrior- DIPG Warrior is The Cure Starts Now’s way to support your family and friends through awareness, support, fundraising and more than anything, honoring your DIPG Warrior.
Pediatric Cancer Patient Resources by State
N8 Foundation - Research and financial assistance for California families
Jessica June Children's Cancer Foundation - Financial assistance for families in Florida area hospitals
Georgia/ South Carolina
Ethen Richardson Foundation - Financial assistance
New Jersey (NJ)
ForeverLoganStrong - Financial assistance and support in the New Jersey area
Frances Foundation - The Foundation strives to alleviate a child’s pain and suffering with a special gift, a special gesture, or even a few special moments. The Foundation also provides financial assistance to impoverished families desperately needing help due to their child’s fight against cancer.
Mya Lin Terry Foundation - The Mya Lin Terry Foundation is pleased to accept applications for monetary grants from pediatric cancer patients living in New Jersey.
Aiden's Avengers - Financial assistance and support
Heroes for Children - Texas families may receive direct and immediate financial assistance for everyday expenses. Case workers refer qualified applicants to our organization, and checks are typically processed within seven days. An average of $750 per request is donated directly to families.
Hayes Tough Foundation - Focuses on families and children fighting childhood cancer throughout the United States.
Chance for Hope Foundation- Our mission is to provide support services for children with cancer and their families, funding for pediatric cancer research and treatment, and educational resources to the general public regarding pediatric cancer.
BIG Love Cancer Care- Providing personalized care to cancer kids and their families at Texas Children's Hospital (Houston) and Dell Children's Medical Center (Austin, TX).
International Child Cancer Support Resources
Making DIPG History in Monterrey - If your child has DIPG and is receiving treatment, you may request financial assistance.